Reggie Watts creates unpredictably brilliant performances using his voice, looping pedals and his giant brain. “Beats that defy” boxes unplugs your logic board with blended poetry, crossed musical genres and a larger-than-life performance.
Sam Berns, age 17, was diagnosed with Progeria when he was 22 months old; a genetic disorder that results with rapid, premature aging. Progeria affects only 1 out of 4 to 8 million birhs and approximately 350 children, in the world, have this disease. His parents, both pediatricians, established The Progeria Research Foundation in 1999 to find the cause, treatment and cure. Children with Progeria live an average of 13 years.
In 2013, Sam’s story was broadcasted as a documentary film with the title: Life According to Sam. His courage and spirit moved everyone who came into contact with him. Sam also shared his life philosophy at TEDxMidAtlantic in October 2013.
“No matter what I choose to become, I believe that I can change the world.” he said in his talk at TEDx last year. “And as I’m striving to change the world, I will be happy.”
Unfortunately, this remarkable young man, who inspired millions of people, passed away on January 10,2014 at the age of 17.
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To see some beautiful stories about Sam, please check out: http://storify.com/progeria/remembering-sam-berns-10-23-96-01-10-14
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Please also watch the following TED Talk where geneticist and physician Francis Collins explains that we know the molecular cause of 4,000 diseases, but for only 250 of them, we have available treatments. He asks why it is taking so long?
In this talk titled “We need better drugs — now!” Sam was the guest of Dr.Francis Collins. Despite his difficult condition, Sam’s brief appearance on stage radiated positivity and inspiration. He was a great soul indeed.
Rest at peace dear Sam!
Watched at: “Curious Souls Get Together” 9th meeting -February 9,2014
I would like to share with you, another fantastic talk with the title: “We should all be feminists.” The talk is given by the Nigerian writer Chimamanda Ngozi Adichie.
I simply adored this talk. It is touching on very serious issues that lie behind the conflicts between cultures, societies, family members and generally between men and women. Lots to learn from and so many sentences are present in her speech that can be quotated as “wise words”.
Generally I love the talks of Adichie. She is extremely intelligent, has a very pleasant personnality on stage, has a beautiful style of putting things into words and, more than that, she is extremely humorous :-)) She touches upon such serious issues so subtly, gently and in such a fun way.
Enjoy the talk !
By the way, as you would remember, we watched another talk by her at TED titled: “The danger of a single story” at our 2nd Curious Souls Get Together meeting. Our discussions on it were so lively and enlightening. Check out this talk, if you missed it !
Isil the Curious Soul 🙂